News

August 13, 2019

New Way of Isolating Immune Cells in Salivary Glands Can Help Monitor Sjögren’s Syndrome, Study Finds

News

Analyzing subsets of immune cells in the salivary gland by examining the cells’ epigenetic makeup is a viable way to measure inflammation that may aid in diagnosing and monitoring ... Read more

August 6, 2019

Estrogen Exposure May Protect Women from Sjögren’s Syndrome, Study Suggests

News

The female sex hormone estrogen appears to protect women from primary Sjögren’s syndrome, a finding that provides new insights into the development of this condition. Specifically, the case-control study ... Read more

August 1, 2019

Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

News

Screening newborns for genetic diseases with treatments that can prevent crippling or deadly progression, especially for rare disorders, has a ways to go in the United States. No state ... Read more

August 1, 2019

Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

News

Oklahoma suffers more tornadoes than any other state, has the highest per-capita rate of women in U.S. prisons, ranks second in the number of teen births per 100,000 teenage ... Read more

July 30, 2019

Alterations in Gut Bacteria May Be Linked to Eye Dryness in Sjögren’s, Study Says

News

People with Sjögren’s syndrome have significant alterations in the composition of gut bacteria compared to healthy individuals, some of which seem to be directly associated with eye dryness, one ... Read more

July 23, 2019

American Indians More Commonly Develop Sjögren’s, Study Suggests

News

American Indians are more commonly affected by Sjögren’s syndrome and show more active disease compared to Americans of other ethnicities, a study shows. The study, “American Indians Have A ... Read more

July 18, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases

News

A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while also accelerating the development of ... Read more

July 16, 2019

Some Sjögren’s Patients at Higher Risk for Parkinson’s, Study Finds

News

People with Sjögren’s syndrome — particularly women, younger patients and those receiving certain immunosuppressant therapies — are at higher risk of developing Parkinson’s disease, according to a new study. ... Read more

July 9, 2019

Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients

News

The challenges Vesna Aleksovska faced when she decided a decade ago to help fellow Macedonians with rare diseases were so daunting, they would have scared off all but the ... Read more

July 9, 2019

Mouse Study Suggests Benefits of Diabetes Drug in Sjögren’s Syndrome

News

A new study in mice suggests that metformin — a drug typically used to control blood sugar levels in diabetes — may be able to reduce inflammation and damage ... Read more

Pin It on Pinterest