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September 17, 2019September 17, 2019

Salivary Gland Ultrasound May Be Added to Validated Criteria for Diagnosing Primary Sjögren’s Syndrome, Study Reports

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A non-invasive assessment of salivary gland damage by ultrasound may be added to current criteria for primary Sjögren’s syndrome (pSS) diagnosis without lowering their accuracy, according to a large ... Read more

September 10, 2019

Routine Exams of Primary Sjögren’s Syndrome Patients Should Include Cognitive Function Tests, Study Contends

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Routine examinations of patients with primary Sjögren’s syndrome should include cognitive function tests to assess the presence of impairments, a review study recommends. The study, “Cognitive Function in Primary ... Read more

September 3, 2019

Mental Health Issues More Common in People with Primary Sjögren’s, Study Says

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Psychiatric disorders including depression, anxiety, and sleep problems are more commonly diagnosed in people with primary Sjögren’s syndrome than in the general population or in those with another rheumatic ... Read more

September 2, 2019August 30, 2019

‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

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Rare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their parents can attest. Two entries in November’s “Disorder: ... Read more

August 29, 2019August 28, 2019

At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

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Developing gene therapies for rare diseases is one thing. Creating gene-edited “designer babies” is quite another. German legal expert Timo Minssen outlined the potentially explosive ethical landmines surrounding such ... Read more

August 27, 2019

Distinct Protein Signatures in Tears and Saliva of Sjögren’s Patients May Aid in Diagnosis

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People with primary Sjögren’s syndrome have a distinct protein composition in their tears and saliva when compared to samples from healthy individuals or those with sicca symptoms, whose dryness ... Read more

August 20, 2019

Study Validates Link Between Some Pro-inflammatory Molecules, Less Fatigue in pSS

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Higher levels of some inflammatory signaling molecules are associated with less fatigue in people with primary Sjögren’s syndrome, challenging prior thoughts that inflammatory molecules directly mediate fatigue in chronic ... Read more

August 19, 2019

Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

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Imagine living your whole life with a painful disease so rare that only 25 others worldwide have what you have. And that you’re one of just six such people ... Read more

August 13, 2019

New Way of Isolating Immune Cells in Salivary Glands Can Help Monitor Sjögren’s Syndrome, Study Finds

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Analyzing subsets of immune cells in the salivary gland by examining the cells’ epigenetic makeup is a viable way to measure inflammation that may aid in diagnosing and monitoring ... Read more

August 6, 2019

Estrogen Exposure May Protect Women from Sjögren’s Syndrome, Study Suggests

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The female sex hormone estrogen appears to protect women from primary Sjögren’s syndrome, a finding that provides new insights into the development of this condition. Specifically, the case-control study ... Read more

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