Mary Chapman, features writer —

From sharing personal stories and educating others, to raising funds for research, supporters globally are poised to mark World Sjögren’s Day — set aside each July 23 to heighten awareness of the chronic autoimmune disorder. Sjögren’s syndrome is thought to occur in approximately 0.1% to 4% of the general…

This year’s Sjögren’s Awareness Month will focus on patient experiences to share glimpses into the lives of people with Sjögren’s syndrome, a complex disorder that is thought to affect four million U.S. residents. Each day in April, the Sjögren’s Foundation will showcase a different patient on its website and…

After a four-year effort led by the Sjögren’s Foundation, new health statistics codes in the U.S. — known as ICD-10 codes — recognizing Sjögren’s syndrome as a distinctive condition from “sicca” are now in effect. The codes are officially known as the International Statistical Classification of Diseases and…

To combat the continued spread of COVID-19 and its Delta variant, Sjögren’s syndrome patients should get a third dose of the Pfizer or Moderna vaccine, the Sjögren’s Foundation has recommended, pursuant to Centers for Disease Control and Prevention (CDC) guidelines. The CDC — the United States’ public…

From sharing inspirational stories to educating others, supporters are poised to mark World Sjögren’s Day, observed annually on July 23 to raise awareness about the disease. Awareness and education are crucial to increasing the recognition, diagnosis, understanding, and management of Sjögren’s syndrome, a chronic autoimmune disorder that predominantly affects…

Applications for a next round of Sjögren’s Foundation research grants are being accepted from U.S. investigators working to better understand Sjögren’s syndrome, a chronic immune system disorder, and improve patients’ lives. The one-year grants are available to basic and clinical scientists who hold an advanced degree at a U.S.

A new $100-million program aims to improve the diversity of participants in U.S. clinical trials with the ultimate goal of achieving better health outcomes and parity in care for underserved patient populations. The initiative seeks to extend the reach of clinical studies to underserved populations in the nation’s urban and rural…

Pri-Med and the Sjogren’s Syndrome Foundation (SSF) recently partnered to present a continuing medical education session in Boston on the systemic autoimmune disease. Held Dec. 4 on the opening of the four-day Pri-Med East conference at the Boston Convention and Exhibition Center, the session was titled…

Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run as high as 350 million — they are thought to impact. Across countries, patients, caregivers and advocates will paint faces, wear…