Being Dry Makes Me Cry
It’s a stale Saturday night and I’m in my living room hanging with the kitties.
My eyes are devastatingly dry and irritatingly itchy! I rub my left eye with two fingers and then my right, which is itchier and burns more for some reason.
Of course, I can’t get in there good enough since my fingers are weak and sensitive, and I have remnants of sores on my fingertips caused by Raynaud’s phenomenon. Ugh. I’m incredibly uncomfortable and out of eye drops.
I can’t wait to devour another popsicle. I’m parched and pounding this ice-cold water. Aaah. Ack, ack! Easy there, dysphagia.
There’s my Dr. Pepper-flavored lip balm! Hmm, hmm, hmm. Muah.
Are there ashes and soot in my mouth? What should I do next? If I chew another piece of Dentyne gum, I’ll surely vomit.
Later that night
Yeah, no relief.
Time to get up and fetch a few Q-tips to stick into my nostrils. I don’t know why I bother, as I’m never able to remove anything. Still, it feels like some shriveled thing set up shop in there. If I did this in public, I wonder if people would think I had rhinotillexomania — more commonly known as compulsive nose-picking.
Blink, blink. Scratch. Squish. Grr, Sjögren’s!
I hear thrush metal vocals in my head scream-singing, “My glands are dry, dry, dry! Why, why why?! I’m desi-CCATED!” It’s followed by a snazzy guitar solo with ornamentation overkill. Nice.
Unexpected road trip
Friends, wouldn’t you agree that dealing with Sjögren’s symptoms, including constant excessive dryness, is harder than people think? And as we know, it isn’t the only struggle connected to this disease.
We cannot allow it to drive us mad. I admit, though, I’d like to karate chop this coffee table or do a fancy Jean-Claude Van Damme spin kick to the cat tree. Better yet, maybe I’ll take a long drive over to Smash*It Breakroom to unload my frustrations. Anyone want to come with me? Road trip!
Sometimes there’s not much we can do about our illness. We try to take care of ourselves and find a way to live with this disease.
I have to remind myself that it’s OK not to be OK. Excuse me while I scream into this pillow.
We’re all in this together. Toodles, everyone.
Positive affirmation of the day: I will focus on the grit in me and not the grit in my eyes.
A shoutout to Siobain. It makes me smile that you are enjoying my diary. I love your name. Be blessed.
Note: Sjögren’s Syndrome News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Sjögren’s Syndrome News or its parent company, BioNews, and are intended to spark discussion about issues pertaining to Sjögren’s syndrome.