Walk for Sjögren’s is a national event created by the Sjögren’s Syndrome Foundation to increase awareness and raise money to support Sjögren’s research and education in a non-competitive, fun, family event.
From 9 a.m. participants may register to start walking at 10 a.m. At 9:40, along a nature trail, participants can visit a health fair or take part in the “ask the experts” question-and-answer session, featuring a local healthcare professional who will clarify doubts regarding Sjögren’s.
Walking is optional, and attending just to show support and connect with other Sjögren’s patients and caregivers is very welcome.
Those who wish to participate also may invite their business to join the team as a sponsor. Co-workers may consider being part of a team by collecting donations or by raising awareness about Sjögren’s in their community.
The walk also is a good place to meet other patients who are living with the disease, and remember one is not alone in this fight.
People can ask for donations to support the walk and receive souvenirs, including T-shirts, sports packs, umbrellas and surprise gifts.
To participate, there is no minimum request for funds raised, however, the average participant usually raises $250. Just by attending, raising or donating $30, and turning in a completed form, you will earn a T-shirt.
Additional frequently asked questions (FAQ) are answered here. It includes information about receipts for donations, specific information about the walk, and more. Free parking is available. A map is available here.
Founded in 1983, the Sjögren’s Syndrome Foundation has continued to increase funding for research and education as part of its mission. It uses donations to advance research and increase education and awareness for the disease. Funds raised through the walk help fund research to develop new therapeutics and diagnostics, to provide support to patients and families, and to increase public and professional awareness of Sjögren’s and others.
Sjögren’s is estimated to affect 4 million Americans, making it three times more common than lupus or multiple sclerosis. Nine out of 10 patients are women. Hallmark symptoms include dry eye, dry mouth, fatigue, and joint pain. The autoimmune disease remains relatively unknown and is often undiagnosed or misdiagnosed.