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May 16, 2018 News by Larry Luxner

#ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live in its 28 member countries, officials meeting last week in Vienna said. More than 900 people from 58 nations attended the 9th European Conference on Rare Diseases & Orphan Drugs (ECRD),…

May 2, 2018 News by Larry Luxner

#ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

At least 800 people representing some 45 countries are soon expected to gather in Austria’s capital city, Vienna, for ECRD 2018, the 9th European Conference on Rare Diseases and Orphan Products. The May 10-12 meeting is sponsored by Eurordis, the Paris-based group that defines itself as a “patient-driven alliance”…

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